Streamline Your Clinical Research Patient Registry Planning

Setting up a patient registry for clinical research requires careful planning across multiple dimensions—from defining the disease population and data elements to establishing consent protocols and data-sharing agreements. This Clinical Research Patient Registry Inquiry Form is designed to help research institutions, pharmaceutical companies, clinical research organizations (CROs), and healthcare providers gather all the essential information needed to evaluate, plan, or collaborate on registry initiatives.

Purpose-Built for Clinical Research Workflows

Whether you're a hospital system exploring a rare disease registry, a pharmaceutical company seeking real-world evidence, or an academic medical center building a multi-site patient cohort, this form captures the critical details that drive registry feasibility, ethics review, and operational planning. It guides inquirers through questions about disease type and scope, required data elements (clinical, genomic, patient-reported outcomes), consent and privacy requirements, anticipated patient volume, and data-sharing or collaboration plans.

By collecting structured, consistent information upfront, your registry coordination team can quickly assess alignment with existing infrastructure, identify regulatory and ethical considerations, and prioritize partnership opportunities—without lengthy back-and-forth email chains.

Designed for Healthcare and Research Environments

This template is tailored to the needs of:

• Clinical research coordinators managing registry intake and feasibility assessments
• Principal investigators exploring new registry collaborations or data sources
• CROs and sponsors evaluating registry partnerships for trials or real-world evidence studies
• Hospital research offices fielding inquiries from internal and external stakeholders
• Patient advocacy groups initiating disease-specific registries to support research

The form uses clear, purpose-driven language aligned with clinical research terminology, making it easy for researchers, clinicians, and data scientists to provide accurate, relevant information. Conditional logic adapts the form to different registry types, data-sharing models, and consent frameworks, ensuring you capture only the details that matter for each inquiry.

Integrate With Your Research Ecosystem

Paperform's integrations make it simple to route inquiries into your existing research management tools. Send new submissions to your CRM, log them in Airtable or Notion for tracking, notify your research operations team via Slack or email, or trigger a Stepper workflow to automate follow-up tasks, schedule feasibility meetings, and coordinate IRB pre-reviews.

For institutions handling sensitive research inquiries, Paperform is SOC 2 Type II compliant and offers robust data security controls, custom data residency, and SSO—so you can trust that inquiry data is handled with the same rigor as your registry data. (Note: Paperform is not HIPAA compliant, so this form should be used for planning and inquiry purposes, not for collecting protected health information.)

Built for Collaboration and Speed

Clinical research moves fast, and so should your intake process. This form template gives you a professional, branded inquiry experience that respects the time and expertise of your collaborators, while giving your team the structured data they need to make informed decisions quickly. Use Paperform's doc-style editor to adjust questions, add institutional branding, embed video explainers, or include links to data dictionaries and governance policies.

Whether you're launching a new registry, expanding an existing cohort, or exploring partnerships, this form is your first step toward more efficient, collaborative clinical research.