Spinal Muscular Atrophy Treatment Monitoring Form

Managing spinal muscular atrophy (SMA) requires consistent monitoring and coordination between multiple healthcare providers. This SMA treatment monitoring form streamlines the process of tracking patient progress during virtual healthcare visits, making it easier for neuromuscular specialists, physical therapists, respiratory therapists, and care teams to collaborate effectively.

Whether you're monitoring response to nusinersen (Spinraza), gene therapy (Zolgensma), or other emerging treatments, this telehealth form captures critical clinical data including motor milestone achievements, respiratory function measurements, treatment-related observations, and quality of life indicators. The structured format ensures nothing falls through the cracks during remote consultations.

Built with Paperform, this template can be customized to match your clinic's protocols and branding. Use conditional logic to show relevant questions based on treatment type or SMA classification, and integrate with your EHR system through Stepper workflows to automatically update patient records. You can also configure automated email notifications to keep your multidisciplinary team informed about changes in patient status.

The form includes sections for caregiver observations, functional assessments, adverse event reporting, and care coordination notes—everything needed for comprehensive SMA management in a telehealth environment. Perfect for pediatric neurology practices, neuromuscular clinics, and specialized SMA treatment centers transitioning to hybrid or remote care models.